An
Important Medical Insight
Shared By An RN On Ovarian Cancer
Years ago,
Gilda Radner died of ovarian cancer. Her symptoms were inconclusive,
and she was treated for everything under the sun until it was too
late. This blood test finally identified her illness but alas, too
late.
Here is the
testimony of a woman who has found herself in the same predicament
and who wishes to share very interesting facts about the way this
terrible disease is being diagnosed in today's modern medicine.......
KATHY'S STORY:
I have Primary Peritoneal Cancer. This cancer has only recently
been identified as its OWN type of cancer, but it is essentially
Ovarian Cancer. Both types of cancer are diagnosed in the same way,
with the "tumor marker" CA-125 BLOOD TEST, and they are treated
in the same way, surgery to remove the primary tumor and then chemotherapy
with Taxol and Carboplatin.
Having gone through this ordeal, I want to save others from the
same fate. That is why I am sending this message to you and hope
you will print it and give it or send it via E-mail to everybody
you know. One thing I have learned is that each of us must take
TOTAL responsibility for our own health care. I thought I had done
that because I always had an annual physical and PAP smear, did
a monthly Self-Breast Exam, went to the dentist at least twice a
year, etc. I even insisted on a sigmoidoscopy and a bone density
test last year.
When I had a total hysterectomy in 1993, I thought that I did not
have to worry about getting any of the female reproductive organ
cancers. LITTLE DID I KNOW. I don't have ovaries (and they were
HEALTHY when they were removed), but I have what is essentially
ovarian cancer. Strange, isn't it?
These are just SOME of the things our Doctors never tell us: ONE
out of every 55 women will get OVARIAN or PRIMARY PERITONEAL CANCER.
The "CLASSIC" symptoms are an ABDOMEN that rather SUDDENLY ENLARGES
and CONSTIPATION and/or DIARRHEA. I had these classic symptoms and
went to the doctor. Because these symptoms seemed to be "abdominal",
I went to a gastroenterologist. He ran tests that were designed
to determine whether there was a bacterial infection; these tests
were negative, and I was diagnosed with "Irritable Bowel Syndrome".
I guess I would have accepted this diagnosis had it not been for
my enlarged abdomen. I swear to you, it looked like I was 4-5 months
pregnant! I therefore insisted on more tests. They took an X-ray
of my abdomen; it was negative. I was again assured that I had Irritable
Bowel Syndrome and was encouraged to go on my scheduled month-long
trip to Europe. I couldn't wear any of my slacks or shorts because
I couldn't get them buttoned, and I KNEW something was radically
wrong. I INSISTED on more tests, and they (reluctantly) scheduled
me for a CT-Scan (just to shut me up, I think).
This is what I mean by "taking charge of our own health care". The
CT-Scan showed a lot of fluid in my abdomen (NOT normal). Needless
to say, I had to cancel my trip and have FIVE POUNDS of fluid drained
off at the hospital (not a pleasant procedure, I assure you), but
NOTHING compared to what was ahead of me). Tests revealed cancer
cells in the fluid. Finally, finally, finally, the doctor ran a
CA-125 blood test, and I was properly diagnosed.
I HAD THE CLASSIC SYMPTOMS FOR OVARIAN CANCER, AND YET THIS SIMPLE
CA-125 BLOOD TEST HAD NEVER BEEN RUN ON ME, not as part of my annual
physical exam and not when I was symptomatic. This is an inexpensive
and simple blood test!
PLEASE, PLEASE, PLEASE TELL ALL YOUR FEMALE FRIENDS AND RELATIVES
TO INSIST ON A CA-125 BLOOD TEST EVERY YEAR AS PART OF THEIR ANNUAL
PHYSICAL EXAMS. Be forewarned that their doctors might try to talk
them out of it, saying, "IT ISN'T NECESSARY." Believe me, had I
known then what I know now, we would have caught my cancer much
earlier (before it was a stage 3 cancer). Insist on the CA-125 BLOOD
TEST; DO NOT take "NO" for an answer! The normal range for a CA-125
BLOOD TEST is between zero and 35. MINE WAS 754 ..... (That's right,
754!). If the number is slightly above 35, you can have another
done in three or six months and keep a close eye on it, just like
women do when they have fibroid tumors or when men have a slightly
elevated PSA test (Prostatic Specific Antigens) that helps diagnose
prostate cancer. Having the CA-125 test done annually can alert
you early, and that's the goal in diagnosing any type of cancer
- catching it early.
Do you know 55 women? If so, at least one of them will have this
VERY AGGRESSIVE cancer. Please, go to your doctor and insist on
a CA-125 test and have one EVERY YEAR for the rest of your life.
And forward this message to every woman you know, and tell all of
your female family members and friends. Though the median age for
this cancer is 56, (and, guess what, I'm exactly 56), women as young
as 22 have it. Age is no factor.
A NOTE FROM THE RN:
Well, after reading this, I made some calls. I found that the CA-125
test is an ovarian screening test equivalent to a man's PSA test
prostate screen (which Ron's doctor automatically gives him in his
physical each year and insurance pays for it).I called the general
practitioner's office about having the test done. The nurse had
never heard of it. She told me that she doubted that insurance would
pay for it. So I called Prudential Insurance Co., and got the same
response. Never heard of it - it won't be covered. I explained that
it was the same as the PSA test they had paid for my husband for
years. After conferring with whomever they confer with, she told
me that the CA-125 would be covered. It is $75 in a GP's office
and $125 at the GYN's. This is a screening test that should be required
just like a PAP smear (a PAP smear cannot detect problems with your
ovaries). And you must insist that your insurance company pay for
it.
The late Gene Wilder and Pierce Brosnan have been lobbying for women's
health issues, asking that this test be required in our yearly physicals,
just like a PAP and a mammogram.
For additional information on CA-125 visit:
TruthorFiction.com - CA-125 Cancer Test
snopes.com - The CA-125 blood test